About Us

Check the blog for updates about Will and stories about loving a child with special needs. We have a blended family with six children and every day is an adventure.

Will sees specialists at the Leukodystrophy Clinic at the Children’s Hospital in Philadelphia (CHOP). We are fortunate to receive help from Patient Airlift Services and take part in their compassionate flight program. The angels who fly us to Philadelphia provide us with the means to seek the best care possible for Will, we are eternally grateful for this gift.