Baricitinib: 1 month and we’re taking steps

Walking Will (click here)

4 weeks of Baricitinib and what did we discover last evening? A walking William!!👣

This means we have a lot more work to do, but more importantly, we have progress. I have only seen Will walk in my dreams…it was once and it was perfect. I didn’t think I’d see the day he’d take steps on his own (or even with support). 👣

We are headed back to Philadelphia next week and will get some help with orthotics to support Will’s ankles. In the meantime, more swimming, therapies, and practice. I’m also interested in getting Will a gait trainer. This equipment will support Will’s body while we practice ‘walking.’ I’m going to find out what will be best for Will and ask the therapists to write the letter to the insurance company. We’re ready for more walking! 👣